LINKS: Chronic Fatigue & Fibromyalgia

Living Well With Chronic Fatigue Syndrome & Fibromyalgia features a detailed resources Appendix, that outlines organizations, associations, support groups, books, magazines, web sites, hotlines, and other resources for people with chronic fatigue syndrome or fibromyalgia and their families, caregivers and practitioners. This selected list of links from the book is provided as a resource for readers. Detailed, complete descriptions and contact information for all these sites and organizations -- plus many many others -- are featured in the book, Living Well With Chronic Fatigue Syndrome & Fibromyalgia.

WEB SITES
TESTING RESOURCES
PATIENT ORGANIZATIONS
PROFESSIONAL ORGANIZATIONS
PROFESSIONAL & PATIENT CONFERENCES
FINDING DOCTORS & MEDICAL PROFESSIONALS
CHIARI MALFORMATION RESOURCES
PREGNANCY AND CFS/FIBROMYALGIA
CFS/FM-RELATED PRODUCTS
PUBLICATIONS
ONLINE NEWSLETTERS
FINANCIAL SUPPORT/ASSISTANCE
PLANNING/SELF-HELP
RELATED/OVERLAPPING ISSUES AND CONDITIONS

CHRONIC FATIGUE SYNDROME/FIBROMYALGIA-RELATED WEB SITES

Living Well With Chronic Fatigue Syndrome and Fibromyalgia -- http://www.cfsfibromyalgia.com

Jacob Teitelbaum's Online CFS/Fibromyalgia Site -- http://www.endfatigue.com
Canberra Fibromyalgia and Chronic Fatigue Syndrome Pages -- http://www.moira.smith.name/index.html
CFIDS/Fibromyalgia Self-Help -- http://www.cfidsselfhelp.org
The CFIDS/M.E. Information Page -- http://www.cfids-me.org/
CFS & Fibromyalgia Information Exchange Forum (Co-Cure) -- http://www.co-cure.org
“CFS Days” -- http://www.geocities.com/cfsdays
CFS Information International -- http://www.cfs.inform.dk
CFSResearch -- http://www.cfsresearch.org
“Chronic Fatigue Unmasked” -- http://www.chronicfatigue.org
Devin Starlanyl's Fibromyalgia & Chronic Myofascial Pain Site -- http://www.sover.net/~devstar
The Fibromyalgia Community -- http://fmscommunity.org
HealthWorld Online -- http://www.healthy.net
ImmuneSupport.com -- http://Immunesupport.com/nsindex.cfm
InfoMIN -- http://www2.rpa.net/~lrandall
Majid Ali, M.D. -- http://www.majidali.com
ME-NET -- http://www.me-net.dds.nl
Men With Fibromyalgia -- http://www.menwithfibro.com
Metabolic Health -- http://www.drlowe.com
The Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia, and Orthostatic Intolerance -- http://www.pediatricnetwork.org
Remedyfind -- http://www.remedyfind.com
The Road Back Foundation -- http://www.roadback.org
Self-Study Modules for Practitioners -- http://www.cfids.org/resources/print-self-study-module.asp
U.S. Centers for Disease Control CFS Information -- http://www.cdc.gov/ncidod/diseases/cfs
WebMD -- http://my.webmd.com/condition_center/fms

TESTING RESOURCES

MDLab -- http://www.mdlab.com
Great Smokies Diagnostic Lab (GSDL) -- http://www.gsdl.com
Antibody Assay Laboratories -- http://www.antibodyassay.com/

CHRONIC FATIGUE SYNDROME/FIBROMYALGIA-RELATED PATIENT ORGANIZATIONS

Arthritis Foundation -- http://www.arthritis.org
CFIDS Association of America -- http://cfids.org
Fibromyalgia Network -- http://fmnetnews.com
Myalgic Encephalomyelitis Society of America -- http://www.cfids-cab.org/MESA
National CFIDS Foundation -- http://www.ncf-net.org
National Fibromyalgia Association -- http://fmaware.org
National Fibromyalgia Partnership -- http://www.fmpartnership.org
National Fibromyalgia Research Association -- http://www.nfra.net
New Jersey Chronic Fatigue Syndrome Association -- http://njcfsa.org
Oregon Fibromyalgia Foundation (OFF) -- http://www.myalgia.com
The Myalgic Encephalomyelitis Association of Ontario -- http://www.meao-cfs.on.ca
National ME/FM Action Network -- http://www.mefmaction.net
Action for M.E. -- http://www.afme.org.uk
The Alison Hunter Memorial Foundation -- http://www.ahmf.org
The ME Association -- http://www.meassociation.org.uk
M.E./CFS Society of NSW Inc. -- http://www.zip.com.au/~mesoc
ME/CFS Society (SA) Inc. -- http://www.sacfs.asn.au
M.E./CFS Society of Victoria -- http://home.vicnet.net.au/~mecfs
South Australian Youth with ME/CFS -- http://www.sayme.org.au
Asociación Argentina Síndrome De Fatiga Crónica -- http://www.arbitrio.com.ar/aasfc.htm
Association Française du Syndrome De Fatigue Chronique Et De Fibromyalgie -- http://asso.nordnet.fr/cfs-spid
Fatigatio e.V. -- http://www.fatigatio.de
ME-vereniging Brussel-Halle-Vilvoorde -- http://www.medeweten.yucom.be
Verein CFS Schweiz -- http://www.verein-cfs.ch

CFS/FM-RELATED PROFESSIONAL ORGANIZATIONS

American Association for CFS -- http://www.aacfs.org
American College of Rheumatology -- http://rheumatology.org
International Myopain Society -- http://www.myopain.org

PROFESSIONAL & PATIENT CONFERENCES

American Association of Chronic Fatigue Syndrome -- http://www.aacfs.org
American College of Rheumatology -- http://rheumatology.org
International Myopain Society -- http://www.myopain.org
National Fibromyalgia Association -- http://fmaware.org
National Fibromyalgia Partnership -- http://www.fmpartnership.org
Alison Hunter Memorial Foundation -- http://www.ahmf.org

FINDING DOCTORS & MEDICAL PROFESSIONALS

AMA Physician Select -- http://www.ama-assn.org/aps/amahg.htm
American Board of Medical Specialties -- http://www.abms.org
American College of Rheumatology -- http://www.rheumatology.org/directory/geo.asp
American Holistic Health Association -- http://ahha.org
Best Doctors -- http://www.bestdoctors.com
CFS & FM Good Doctor List -- http://www.co-cure.org/Good-Doc.htm
CFS/FMS Doctor Locator -- http://beatcfsandfms.org/html/DocLocator.html
Devin Starlanyl's Care Provider List -- http://www.sover.net/~devstar/provider.htm
Fibromyalgia Network -- http://www.fmnetnews.com
WholeHealthMD.com Find A Practitioner -- http://www.wholehealthmd.com

CHIARI MALFORMATION RESOURCES

The Chiari Information Exchange -- http://www.chiari.com
World Arnold Chiari Malformation Association -- http://www.pressenter.com/~wacma/

PREGNANCY AND CFS/FIBROMYALGIA

Action for ME Pregnancy Network -- http://www.pregnet.org/
Childbearing and CFIDS: Making a Difficult Decision -- http://cfids.org/archives/2000/2000-3-article01.asp
The Effect of Pregnancy on Fibromyalgia Symptoms -- http://www.partnersagainstpain.com/html/assess/assess.htm?pg=6230§ion=assess
Women with Chronic Fatigue Syndrome: Their Experiences of Pregnancy, Childbirth and Caring for Preschool Children -- http://avoca.vicnet.net.au/~mecfs/general/pregnancy.html

CFS/FM-RELATED PRODUCTS

Cuddle Ewe Underquilts -- http://cuddleewe.com
Pro Health, Inc. -- http://immunesupport.com
To Your Health, Inc. -- http://www.e-tyh.com
Fibromyalgia & Chronic Fatigue Guided Imagery Tape/CDs -- Health Journeys Guided Imagery Audios By Belleruth Naparstek -- http://www.healthjourneys.com

PUBLICATIONS

Arthritis Today -- http://www.arthritis.org
CFIDS Chronicle -- http://cfids.org
Fibromyalgia Aware -- http://fmaware.org
Fibromyalgia Frontiers -- http://www.fmpartnership.org
Fibromyalgia Network -- http://fmnetnews.com
Health Points -- http://e-tyh.com
HealthWatch -- http://www.immunesupport.com/healthwatch/
Journal of Chronic Fatigue Syndrome, Journal of Musculoskeletal Pain -- http://www.haworthpressinc.com
The National Forum -- http://www.ncf-net.org

ONLINE NEWSLETTERS

The Autoimmune Report -- http://www.cfsfibromyalgia.com/newsletter/index.htm
The Fibromyalgia Community -- http://fmscommunity.org
National Fibromyalgia Association -- http://fmaware.org/newsletter.htm
Immunesupport.com Research and Treatment News -- http://www.immunesupport.com/bulletins/
Remedyfind Chronic Fatigue Syndrome & Fibromyalgia Newsletters -- http://remedyfind.com

FINANCIAL SUPPORT/ASSISTANCE

CFIDS Emergency Relief Services, Inc. -- http://www.cfidsers.org
Social Security Disability Programs -- http://www.ssa.gov/disability

PLANNING/SELF-HELP

Jacob Teitelbaum's Online CFS/Fibromyalgia Planning Program -- http://www.endfatigue.com
CFIDS/FM Self-Help -- http://cfidsselfhelp.org

RELATED/OVERLAPPING ISSUES AND CONDITIONS

Thyroid Disease -- http://www.thyroid-info.com
Autoimmune Disease -- http://www.autoimmunebook.com
American Autoimmune Related Diseases Association -- http://www.aarda.org
American Environmental Health Foundation -- http://www.aehf.com
The American Pain Foundation -- http://www.painfoundation.org
Irritable Bowel Syndrome Association -- http://www.ibsassociation.org
Lupus Foundation of America -- http://www.lupus.org
Lyme Disease Foundation -- http://www.lyme.org
Multiple Chemical Sensitivity Information -- http://www.mcsurvivors.com
National Headache Foundation -- http://www.headaches.org
National Sleep Foundation -- http://www.sleepfoundation.org
Restless Legs Syndrome Foundation -- http://www.rls.org
The TMJ Association (Temporomandibular Joint Disease) -- http://tmj.org/

All Information © 2004, Mary J. Shomon. All rights reserved.

Note: This site does not provide medical advice. The contents are for informational purposes only, and are not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you read here. If you think you may have a medical emergency, call your doctor or 911 immediately.